For years I have known I have a hearing problem. My left ear is much worse than my right. It's always been kind of a joke within the family. I'm all about joking about the many ailments of my body. After my last hospital stay in Feb. I noticed a significant change in my hearing. It was pretty concerning seeing as how I already had trouble hearing. My family noticed it too. Some conversations were getting frustrating both for me and whomever I was speaking with. I was also becoming slightly embarrassed having to keep asking people to repeat themselves, especially people I don't know very well.
I decided it was time to take the plunge and revisit the ENT. Especially ine my insurance covers them t the U of U hospital again. My appointment was on Friday. To say I was/am a little discouraged is an understatement. During the test I knew I was failing miserably. After the test the lady came in and showed me the change that had occurred within a 3 year span. It was significant, surprisingly on both sides. I had to hold back the tears. When meeting with the dr. We decided to do surgery on my right ear and patch up the hole in my ear drum. Hopefully this will help my hearing improve somewhat. We will see how that goes and then decide whether to try the left ear.
I'm quite surprised at how much this news affected me. I mean, come on, I knew I was deaf. There was no denying it. For some reason seeing it on paper and seeing how much loss has occurred in such a short time, well, I wasn't prepared for that. My husband asked me why I let numbers affect me so much? You see, with CF my lung tests are based on numbers. The lower the numbers the worse I am. I always tell myself don't go by the numbers it's all in how you feel. It's a lot easier to say than to always do. Sometimes I think I make myself think I'm okay. I think it's a survival technique I've come up with, pretend all is well until someone or some numbers tell you otherwise. So unfortunately I let the numbers affect me more than I like. I'm trying to not be discouraged. M trying to tell myself it will all be okay. I'm in complete denial that a hearing aide may be in my near future. And I'm trying desperately to ignore the fact that CF has yet again taken something from me.
Sunday, July 3, 2011
Say What?
Posted by Emilee at 1:09 PM
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5 comments:
I had no idea CF affected parts of your body such as your ears. That's crazy! I'm sorry! Your last stay here, I did notice you saying what a lot but I really didn't think too much of it! But of course, you know all will be well. You always have an amazing attitude! This change will be no different! When is the surgery? I'll have to call or text you soon! So I'm assuming we're still on for August...I got your email...I'm so excited that we got our dates mixed up and that we can still hang out!
Ugh! I'm so sorry. Have you been on Tobi or Amikacin. The Amikacin took the highest pitch hearing in my right ear, but it doesn't impact my day to day hearing so much. My doc makes me get a hearing screening every 6 months, since I'm on Amikacin for a lot longer.
I too let the numbers impact me more than I would like. The numbers don't lie. You can't hide from them. I totally get where your coming from on that one. Sending you TONS of love and hoping that the surgery helps you regain some of what you've lost.
Stace,
I've been on Tobramyacin quite a bit. I noticed the biggest change thispast Feb. hospitalization. Hopefullyit will help. We shall see. Thanks for love:)
When is your surgery? Nothing is more frustrating then not being able to hear... Darn Tobi! I totally get the number thing! I agree we just tell ourselves we are fine and we keep going and going then to see what we are at on paper then we realize well maybe I need a 2 wk break.
I'm so sorry girl. I am glad though that you made the appointment so you can move forward, and hopefully fix things like new. I love you lots! Take it easy.
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